Hot water as pain relief.

Since we moved into our new flat, I have been unable to have a bath. I can still have very cramped showers, or wash at the sink, but there’s a crack in the bath, and we would like it if we didn’t flood the shop downstairs.
As such, my usual hot water therapy has stopped. I use it to help my back and shoulders relax, as the pain and lack of strength in my tendons causes my major muscles to tense and basically never relax. The muscles in my shoulders end up so hard from tension, it gets pretty difficult to tell the difference between them and bone.
But today, we are getting a whole bath suite! I love our landlords! I can’t wait to have a bath and make myself relax. I have some cheap, good bath products that help me relax, which I will blog about (probably after the bath).
As a person with erratically sensitive skin, I often develop sudden intolerances to things I have always been fine with before. I tend to be very brand loyal, so long as I don’t develop these reactions.
So, upcoming girly blog! Consider yourselves warned!

Gabapentin (Neurontin)

For Shaun over at Praying for One Day. Thought you’d appreciate a well researched piece on Gaba. 🙂

Elle and the Auto Gnome

The author is not medically trained, and not advising one way or the other on this medication.

It is very easy to end up with only a part of the information available when trying to find out about a medication. Without more information from more than one viewpoint we have far less of a secure foundation to make a decision which is ultimately going to affect our health. I am not writing this to sway you one way or the other. I would always want any patient to make-up their own mind. That is our moral and legal right to do so.

Any medication has pros and cons. The key is weighing up the odds and deciding what works for our particular body with our particular condition(s), symptoms, medical history and so on. This is something for you to discuss with your doctor / medical team and a pharmacist, and not…

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Do Not Lose Your Sense of Humor!!!!


Do Not Lose Your Sense of Humor!!!!

Not everyone is going to understand an invisible illness, especially chronic pain. People have judged me most of my life because of this invisible illness and it used to make me so depressed. I look fine, I’m in good shape, I have a college degree, and on the outside I appear to be the happiest person you will meet. Chronic pain sucks. There is no way to sugar coat it. But, do NOT allow anyone to make you feel less of a person because of your illness. Ignorance is everywhere. We cannot make people believe that we have chronic pain. So what? If someone doesn’t believe you then you are better off without them. I have lost a lot of friends due to chronic pain and maybe it is a sad thing but I am actually at peace with that now. I do not need anyone to believe me. I…

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30 Things About My Invisible Illness You May Not Know

I am planning to add my own answers to these questions, but this blog illustrates the feeling of living with a complex and chronic condition.

Life Through the Eyes of a "Cat"

Invisible Illness Awareness Week

Even when we have known a person for decades there are still things we can discover about their daily life with chronic illness. And when we learn a bit more about what something is they love to hear, or what their morning may be like, it can help us be more compassionate to all of those around us who are suffering in ways we may not have noticed.

You never know what you may have in common with others around you.

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: Ehlers-Danlos Syndrome, Chiari Malformation, Syringomyelia

2. I was diagnosed with it in the year: 2009

3. But I had symptoms since: I was a small child

4. The biggest adjustment I’ve had to make is: Realizing that I am always going to have to struggle with everyday tasks…

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